Identical Twins With Identical Kidney Disease Urge Coloradans To Become Living Donors

Posted on 12. Jun, 2017 in Connections: A Blog about Life!

AURORA, Colo. (CBS4)– Identical twins from Thornton share an identical problem. Both suffer from a rare disease that has led to kidney failure.
 
One twin has been scheduled for a kidney transplant this month, but the other is waiting for a donor. “Shared a room, always dancing, laughing together, literally always together,” Kaylee and Aubree Adams said.
 
The inseparable sisters were in a bed at Children’s Hospital Colorado, side by side, as usual. Kaylee and Aubree are identical twins. They have the same eyes, the same smiles and the same sickness.
 

“It’s called FSGS or Focal Segmental Glomeruloscl… I can’t say the last word,” said Aubree.
 
“Sclerosis!” said Kaylee and shared a fist bump with her sister. The duo was diagnosed with the rare disease at 4 years old. They have lived with weakness, headaches and swelling.
 
Now, at age 20, their kidneys are failing.
 
Aubree is preparing for surgery. A machine spins and separates harmful antibodies from her blood. It’s a critical step toward a kidney transplant. Aubree has found a living donor. Incredibly, it is her best friend Nikki’s identical twin sister, Kenzie Saint-John.
 

Aubree: “She’s the perfect person for it.”
 
Kaylee: “She’s really selfless.”
 
Aubree: “Yeah, very, very selfless. She doesn’t even think twice about it.”
 
Meanwhile, Kaylee is on the list for a kidney. It will be her second transplant.
 
“I’m just waiting for someone to step up,” said Kaylee.
 
These sisters would do anything for each other, including giving a kidney if they could. They’re urging others to become living donors.
 
“You have two kidneys, why not share?” asked Aubree.
 
According to the United Network for Organ Sharing (UNOS) 1,881 people in Colorado are waiting for a kidney.
 
Tuesday, June 13, is Colorado Living Donor Day. It is a celebration of the courage of living organ donors, but it also shines the spotlight on the need for many more.
 
Those interested in being tested as a living donor, should contact American Transplant Foundation at 303-757-0959 or sign up for the Potential Living Donor Database.
 
To begin the process of living donation at University of Colorado Hospital, anyone interested can go directly to www.uchealthlivingdonor.org to get information and complete a health history questionnaire. Call 720-848-0855 with any additional questions.
 
Kathy Walsh is CBS4’s Weekend Anchor and Health Specialist. She has been with CBS4 for more than 30 years. She is always open to story ideas. Follow Kathy on Twitter @WalshCBS4.

To see the original article on the CBS4 site, please click here.

2016 Annual Tree of Life

Posted on 29. Nov, 2016 in Connections: A Blog about Life!, Events, Past Events, Recent Events

tree-of-life

 

The American Transplant Foundation is again helping bring cheer this holiday season to the families of transplant and dialysis patients in need.
 
 
Some are single parents who are worried they won’t be able to afford gifts for their kids.
 
Some have experienced hardships since their transplant surgery, such as losing a job or experiencing medical complications, and are struggling to make ends meet this season.
 
Some are families with young children whose parents both underwent transplant surgeries and are worried they won’t be able to provide for their children.

 
 
 

We need YOUR help this December to make these patients and their families’ holidays a bit brighter.

 

Your 100% tax deductible donation will help us fund gift cards to Target that we are distributing to all patients in need. The suggested donation is $25 and can be made:

 

Online, please put “Tree of Life” in the comments.

 

By check to
 American Transplant Foundation
 600 17th Street, Suite 2515S
  Denver, CO 80202

 

By phone:(303)757-0959

 

We will be distributing $25 Target gift cards to those patients most in need with your support!

 

 

See how your contribution can make a big impact in others’ lives this holiday season from previous years’ responses.

 

Michele, a current dialysis patient

I want you to know how grateful and thankful I am that you made me a part of your family. Thank you! I was not able to be with my family and had no money, Your gift card helped me so much – I bought food. All I can think is God must have sent you to answer my prayers.
Thank you so much!
 

 
 
 

Calvin

I am blessed to have someone who cares about me and supports me in my darkest and most difficult time. You are really an angel. Thank you and God bless you!

 
 
 
 
 
 

Click here for more beautiful cards from previous patients:

 

Team Transplant is key part of Subaru Elephant Rock!

Posted on 25. May, 2016 in Connections: A Blog about Life!, In The News

For the last seven years, the American Transplant Foundation and its team of enthusiastic cyclists have plied the courses of the Subaru Elephant Rock Cycling Festival around Castle Rock to raise money in support of their efforts to save lives by reducing the ever-growing list of people awaiting a life-saving transplant. Team Transplant, which includes transplant recipients, living donors and friends, families and supporters of the foundation’s work among its more than 90 riders, has raised nearly $500,000 for the foundation over those seven years. That amount is more than 90 percent of the organization’s fundraising goals.

 
“Team Transplant and the foundation are among our most enthusiastic riders every year,” Harris said. “They bring positive energy, a growing team of riders of all ages, awareness of an important cause, and an additional opportunity for us to give back to our community. We’re always thrilled to have them join us in Castle Rock.”

 

The Subaru Elephant Rock Cycle Festival will offer five course lengths June 5.

The Subaru Elephant Rock Cycle Festival will offer five course lengths June 5.


 

This year, the foundation is celebrating its 10th anniversary and once again Team Transplant will be a key part of the Subaru Elephant Rock Cycling Festival.

 
“This non-traditional, but incredibly effective way of fundraising is vital to supporting the American Transplant Foundation’s lifesaving programs, including our patient grants for living organ donors and transplant recipients,” said Erica Gundry, the foundation’s manager of programs and outreach. “Our riders give patients in Colorado and beyond the hope they need.”

 

Click here to view the full article.

Recognized and awarded as outstanding Nonprofit Citizen Developers!

Posted on 25. May, 2016 in Connections: A Blog about Life!, In The News

QuickBase concluded its EMPOWER 2016 conference with more than 600 people in attendance—a nearly 60 percent increase from 2015.

 

The leading low-code application development platform provider’s annual customer conference aimed to equip citizen developers with education and resources to supercharge their digital transformation initiatives.

 

anastasia darwish at quickbase empower

erica gundry at QuickBase EMPOWER

quickbase cares american transplant foundation

quickbase cares transplant foundation anastasia darwish

Onsite the company announced its own corporate social responsibility program, “QuickBase Cares.” As its first commitment, QuickBase made a donation to one of its non-profit customers— the American Transplant Foundation—and pledged to match attendee donations for up to $10,000 in total!

 

View the full article on Yahoo Finance here.

Events: Young Professionals Group (TLC)

Posted on 29. Mar, 2016 in Connections: A Blog about Life!

Events:

  • December 9, 2015- TLC Holiday Party
  • October 18, 2015- TLC ran the 2015 Rock ‘n’ Roll races with Team Transplant
  • July 18, 2015- A Special Evening with Train & The Fray, A VIP experience at Fiddler’s Green, Denver, CO
  • June 6, 2015- TLC cycled at the Elephant Rock Cycling Festival with Team Transplant
  • December 4, 2014- Annual TLC Holiday Party
  • October 19, 2014- TLC ran the 2014 Rock’n’Roll Marathon Series
  • April 2014 – Donate Life Month; TLC awareness initiative
  • June 13, 2014- TLC’s private rooftop The New Mastersounds concert (see the link to the YouTube video above)
  • June 1, 2014 – TLC cycled with Team Transplant at the 2014 Elephant Rock
  • December 2013 – TLC supports Tree of Life initiative to help dialysis and transplant patients
  • November 8-10, 2013 – TLC supports National Donor Sabbath initiative to raise awareness in religious sectors
  • October 20, 2013- TLC runs the 2013 Rock’n’Roll Marathon Series
  • October 17, 2013 – TLC get-together, Details TBD
  • September 26, 2013 – Transplant Hero Awards – THE AFTER PARTY – hosted by TLC
  • July 25, 2012 – TLC Summer Appreciation Party at historic Harman Hall in Cherry Creek
  • July 21, 2013 – TLC celebrates life with ATF in the 2013 Donor Dash 5K run/walk
  • June 22, 2013 – TLC volunteers at the Westword Music Showcase
  • June 6, 2013 – TLC meeting with special guest, 15-year-old transplant recipient, Austen.
  • June 2, 2012 – TLC cycles with Team Transplant at the 2013 Elephant Rock
  • April 2013 – Donate Life Month; TLC awareness initiative
  • March 21, 2013 – Members only meeting at BHFS
  • March 2013 – TLC hosts NCAA March Madness fundraising bracket
  • February 7, 2013 – TLC Volunteer Project at the White Out Fashion Show
  • January 23, 2013 – TLC Happy Hour mix and mingle
  • December 3, 2012 – TLC Holiday Party
  • November 1, 2012 – Members only meeting at Donor Alliance Organ Procurement Center.
  • July 12, 2012 – TLC Volunteer Project
  • April 19, 2012 – Quarterly meeting 6:00-8:00 p.m., historic Harman Hall in Denver’s Cherry Creek neighborhood
  • April 1, 2012 – Bowling For Life hosted by TLC Founding Member Jessica Smith. 5:00-8:00 p.m., Celebrity Lanes. Everyone is invited!
  • February 25, 2012 – Mardi Gras Miracles
  • December 6, 2011 – TLC Members-only holiday event, 6:00 pm, Brad Farber’s house.
  • October 10, 2011 – Members-only meeting at the Downtown Denver offices of Brownstein Hyatt Farber Schreck: 410 17th St., Suite 2200,  5:30 p.m. – 6:30 p.m.
  • October 9, 2011 – TLC Team runs in the Denver Rock ‘n’ Roll Marathon
  • August 10, 2011 – TLC Founding Members Reception
  • June 28, 2011 – TLC Kick Off

2016 Transplant Hero Awards Winners

Posted on 28. Mar, 2016 in Connections: A Blog about Life!, News Releases

As we celebrate our Transplant Hero Awards*, we are honored to announce our 2016 award winners 

Congratulations to our very special winners!

TAA winners

Volunteer of the Decade (002)

*This year’s recipients were selected by a committee comprised of community volunteers, donor families, and the Foundation’s Transplant Leadership Council’s Members.

2016 Transplant Hero Awards Gala

Posted on 22. Mar, 2016 in Connections: A Blog about Life!

Saturday, June 11, 2016 at 6:30pm

The Ritz-Carlton, Denver

The Transplant Hero Awards is a special evening designed to support the American Transplant Foundation’s mission to save lives by reducing the growing list of women, men and children who are waiting for a transplant by maximizing living donation.  We will recognize heroes who have gone above and beyond to advance the transplant community and to save lives through living organ donation.  Click anywhere on the invitation below to be directed to our Gala webpage for tickets, honorees, and more!

 

THA new graphic 4.18.16

My Donor’s Gift “Has Given Me a Future”

Posted on 03. Mar, 2016 in Connections: A Blog about Life!, In The News, News Releases

Chelsey Larson, American Transplant Foundation TLC Member and Mentor, chose to donate one of her kidneys to acquaintance Ellen Rorman, an action that gave Ellen a future and changed Larson’s own life forever. Chelsey barely knew Ellen, but that didn’t stop her from donating a kidney. “If people don’t know anybody that went through a transplant, it’s a very scary thing,” Larson said. “I feel like my purpose now is to show others that you can do this.”

 

The vast majority of those who have donated, including Chelsey, have reported quality of life that is higher than someone who is comparable to them in age and sex but have not donated, Spong said. One study Spong cited shows that 99 percent of donors would donate again.

 

Today, Larson is living in Colorado and volunteering with the American Transplant Foundation. She’s working to help raise money for donors and recipients who need financial assistance while recovering from surgery and she wants to increase awareness about donating.

 

“If people don’t know anybody that went through a transplant, it’s a very scary thing,” Larson said. “I feel like my purpose now is to show others that you can do this and you can save a life and still live a perfectly normal and healthy life.”

 

The surgery forever changed Rorman’s life, and she will always be grateful for Larson’s choice.MH_Blogs_AdultTransplant_ChelseyLarsonEllenRorman

 

“Chelsey’s selfless decision to do this for me has given me a chance,” Rorman said. The transplant gave Rorman freedom to go on weeklong vacations, enjoy a weekend without worrying about dialysis, and eat her favorite food, buffalo wings, once more.

 

“It really has given me a future; it’s given me the opportunity to live the life I’ve wanted to live,” she said.

 

To read the full article on University of Minnesota Health, please click here.

Transplant Hero Awards Kickoff Reception

Posted on 16. Feb, 2016 in Connections: A Blog about Life!

Thank you to our Transplant Hero Awards Gala Committee and Co-Chairs. We are all very much looking forward to the Gala on Saturday, June 11th, and this Kickoff Reception was a perfect celebration of a job well done! The work you are doing with helping us to plan the Gala and spread awareness is insstrumental to our success and is ultimately helping us save lives!

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Transplant Hero Awards Kickoff Reception

Posted on 04. Feb, 2016 in Connections: A Blog about Life!, Events, Past Events

Thank you to our Transplant Hero Awards Gala Committee and Co-Chairs. We are all very much looking forward to the Gala on Saturday, June 11th, and this Kickoff Reception was a perfect celebration of a job well done! The work you are doing with helping us to plan the Gala and spread awareness is instrumental to our success and is ultimately helping us save lives!

kicckoff kickoff 1 kickoff 2 kickoff 3 kickoff 4 kickoff 5 kickoff 6 kickoff 7 kickoff 8