My name is Robb S. and I am asking for your help to save my life.
I live in Colorado with my wife and two daughters (ages 11 and 15). I’m also a son, a brother and a nephew. One of my biggest prides and joys in life is to take care of and support those I love. My failing health makes it harder each day to do the things I want and need to do to support my family.
When I was 12, I contracted Henoch-Schonlein purpura, a disorder that causes the small blood vessels in your skin, joints, intestines, and kidneys to become inflamed and bleed. Although we didn’t know it at the time, it is now believed that disease caused permanent damage to my kidneys. I was diagnosed with Focal Segmental glomerulosclerosis (FSGS) in my late 30’s. FSGS is a type of glomerular disease and describes scarring (sclerosis) in your kidney.
FSGS affects both of my kidneys. Medication worked for some time to slow the progress of the disease, but I am now 52 and my kidney function has deteriorated to the brink of failure. I work hard at controlling the things I can (diet, exercise, taking my medication), but this disease that I cannot control is now winning the battle.
I am searching for someone to be my living donor. I was adopted as a baby and do not know my blood relatives. I’m asking family, friends and strangers for help. I am on the deceased donor list at UCHealth in Aurora, CO. However, there is no guarantee that I will be chosen to receive a kidney from a deceased donor. A living donor will give me the opportunity to be around for my daughters as they grow up.
I am blood type O+ and can only receive the transplant from type O+. This makes finding a donor even more challenging.
All medical costs are covered by my insurance. The American Transplant Foundation also covers lost wages for living donors
so you won't have to worry about being away from work.
If you are interested in being a living donor for my benefit, please complete UCHealth's Living Kidney Donor Questionnaire
or call 720-848-0855
for more information on being evaluated.
Thank you for listening to my story and considering how you can help,