Transplant Support Group Guidelines

Welcome to the Transplant Patient Support Group! These guidelines are designed to ensure that everyone can make the most of their experience during our calls and foster a harmonious experience for all members.

As a community, we welcome a space that welcomes all races, ethnicities, cultures, sexualities, gender identities, religions, ages, nationalities, and abilities.

Raise issues Quickly: If any interaction doesn't meet your standard of a safe and supportive environment, please tell us. We are here to maintain harmony in the community.

It is critical that you follow these guidelines: 

  • Do not give any medical advice – direct all medical/clinical questions to the transplant center;
  • Do not recommend or endorse any specific medical or non-medical test, physician, transplant center, or product;
  • Keep participant's contact, medical, and personal information confidential! Do not share information with any other persons outside of ATF staff; and
  • It is strictly prohibited to push personal products, perspectives, or agendas on participants. What worked for you might not always be the right answer for them.

OUR STANDARDS

All members of the community are expected to respect our group graces and act and interact in ways that contribute to an open, welcoming, diverse, inclusive, and healthy community.

These group graces extend to all events, whether virtual or in person.

What is the purpose of the calls?

  • Our calls provide an opportunity for you to seek answers to your questions, receive additional support throughout your transplant journey, and share any notable experiences.
  • Depending on the number of people on the call, we may ask you to pose your question in the chat vs un-muting yourself.
  • Have a question? Ask away using the chat or use the Zoom reactions to raise your hand
  • We encourage you to share any helpful or useful tips or resources that you have discovered along your journey

How do the calls work?

  • Showing yourself on video is welcomed/strongly encouraged.
  • You will be muted by default when you first join the call. You are welcome to unmute yourself and say hello, but please make sure if you do unmute that you are in a quiet place, as background noises can be very distracting.
  • If it becomes apparent that you are engaged in a conversation with someone outside of the call (such as a family member or partner), we will mute you to maintain the focus of the group.

Positive Behaviors

Kindness, empathy, and respect

This is the foundation of our community. Everyone deserves respect and carries value. We expect kind, generous, considerate communication.

Judgment-free zone

Sharing your story can feel vulnerable. We welcome discussion, considerate and constructive feedback, and encouragement. What works for one does not necessarily work for all.

Inclusivity

  • Be mindful of the language and words you choose.
  • Could your words make someone feel judged, isolated, or offended? Please remember that participants in the support group have diverse backgrounds.
Things to be aware of:
  • Ableist language: phrases that imply that a disability makes a person less than, and that disability is bad, negative, or a problem to be fixed, rather than a normal, inevitable part of the human experience.
  • Gendered language: the gendering of words and phrases that shape our thinking about what is masculine and feminine, male and female and thus perpetuate assumptions and stereotypes in society.
  • Cultural appropriation: when members of a majority group adopt cultural elements of a minority group in an exploitative, disrespectful, or stereotypical way.
Optional articles to read:

Unacceptable Behaviors

Examples include:
  • Shaming, demeaning, discriminatory, or threatening behavior.
  • Trolling, insulting or derogatory comments, and personal or political attacks.
  • The use of sexualized language or imagery, and sexual attention or advances of any kind.
  • Public or private harassment.
  • Other conduct which could reasonably be considered inappropriate in a professional setting.

OUR RESPONSIBILITY AS COMMUNITY LEADERS

ATF leaders and volunteers are responsible for clarifying and enforcing our standards of acceptable behavior and will take appropriate and fair corrective action in response to any behavior that they deem inappropriate, threatening, offensive, or harmful.

Community leaders have the right and responsibility to remove, edit, or reject any community contributions that are not aligned to these Group Graces, and will communicate reasons for moderation decisions when appropriate.

enforcement

The Basics

Instances of abusive, harassing, or otherwise unacceptable behavior may be reported to your primary contact at ATF

If you are being harassed or have been the target of abusive or unacceptable behavior, notice that someone else is being harassed, or have any other concerns, please contact us immediately.

All reports will be reviewed and investigated promptly and fairly.

All community leaders are obligated to respect the privacy and security of the reporter of any incident.

Reporting Guidelines

When reporting an incident, please provide as much of the following information as possible to support our leadership team to investigate and assess the incident:

  • Names of all the people involved, if known
  • When and where the incident occurred
  • What happened
  • Any additional supporting context
  • Was this a one-off or ongoing occurrence

Enforcement Policies

Our leadership team will follow these Community Impact Guidelines in determining the consequences for any action they deem in violation of our Group Graces:

1. Correction

Community Impact: Use of inappropriate language or other behavior deemed unprofessional or unwelcome in the community.

Consequence: A private, written warning from support group leaders, providing clarity around the nature of the violation and an explanation of why the behavior was inappropriate. A public apology may be requested.

2. Warning

Community Impact: A violation through a single incident or series of actions.

Consequence: A warning with consequences for continued behavior. No interaction with the people involved, including unsolicited interaction with those enforcing the Code of Conduct, for a specified period of time. This includes avoiding interactions in community spaces as well as external channels like social media. Violating these terms may lead to a permanent ban.

4. Permanent Ban

Community Impact: Demonstrating a pattern of violation of community standards, including sustained inappropriate behavior, harassment of an individual, or aggression toward or disparagement of classes of individuals.

Consequence: A permanent ban from any sort of public interaction within the community.


QUESTIONS?

Email us!